PND48 Development of A Burden Questionnaire: Family Burden of Ichthyosis in Infants
نویسندگان
چکیده
منابع مشابه
Family burden in inherited ichthyosis: creation of a specific questionnaire
BACKGROUND The concept of individual burden, associated with disease, has been introduced recently to determine the "disability" caused by the pathology in the broadest sense of the word (psychological, social, economic, physical). Inherited ichthyosis belong to a large heterogeneous group of Mendelian Disorders of Cornification. Skin symptoms have a major impact on patients' Quality of Life bu...
متن کاملHaemangioma family burden: creation of a specific questionnaire.
To develop and validate a specific questionnaire to assess burden on families of children with infantile haemangioma (IH): the Haemangioma Family Burden questionnaire (HFB). Items were generated from a literature review and a verbatim report from parents. Subsequently, a study was implemented at the Necker Hospital and the Pellegrin Children's Hospital for psychometric analysis. The HFB was ref...
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اشعار ریچ، به عنوان اشعاری که همیشه در حال تغییر و دگرگونی هستند، تجسمی از رشد و دگرگونیِ انسان هستد. پایان نامه ی حاضر، با تمرکز بر روی مراحل سیر شعری ریچ از تغییری در دنیا به عکس هایی فوری از یک عروس، سپس به شیرجه به درون کشتی شکسته و در نهایت به صبری عجیب مرا تا اینجا آورده، به بررسی این مراحل در قالب نظر شوالتر در رابطه با سه مرحله ی پیشرفت ادبی زنان یعنی مرحله ی زنانه، زن گرا و زن محور می پ...
15 صفحه اولBurden of inherited ichthyosis: a French national survey.
Moderate to severe ichthyosis is known to have a significant impact on quality of life. A French national survey was performed to describe in more detail how ichthyosis impacts the patients' lives. A questionnaire specifically dedicated to ichthyosis was distributed to patients followed in hospital expert centres or members of the French association of patients. A total of 241 questionnaires we...
متن کاملCORRELATION OF BURDEN OF CARE AND SPIRITUAL HEALTH IN FAMILY CAREGIVERs OF CANCER PATIENTS
Background & Aim: Families of patients with cancer during the course of their care of patients suffer from various economic, physical, social, psychological and spiritual challenges that cause their burden of care. Understanding the correlation between care and hope in these families can be effective in establishing a support system to reduce this burden. The aim of this study was to explore th...
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ژورنال
عنوان ژورنال: Value in Health
سال: 2011
ISSN: 1098-3015
DOI: 10.1016/j.jval.2011.08.514